Just a quick update to let you all know Kinsey was re-admitted today. Doctors don't yet agree on what is next. Her doctor told me today, "You guys are frustrated with this big dose of fear put in there, and we are just as frustrated thinking, 'What in the hell do we do next?'" Not terribly comforting. The infectious disease people recommended an ENT doc come in on the case and they culture/biopsy the tissue in her cheek that is so swollen. Then they will go from there. She had about a 5 hour period today of feeling good, cutting up with everyone, and singing Joy to the World (loudly). Then, by the time we got her to a room, she crashed again. Numbers were "in the toilet" again today with a platelet count of 3! At first, they couldn't find platelets and said she'd either need to wait until tomorrow (really dangerous) or take a multi-donor unit (not good). Fortunately they found a near match they said would work fine. The HLA matched ones, they still tell us, will be next time. The worse part is that her doctor won't see her again until after she's discharged. the doc doing rounds this week will. Nice man; we've met him once for about 5 minutes, during which Kinsey yelled at him not to touch her and he exited, seemingly intimidated by her. He wears a nice bow tie and seems truly gentle and is probably a good doctor ... but ... Kinsey's doctor assured me he'd written two pages of notes on her! I wanted to tell him I had two binders of notes on her! He did add, "if anyone bothers to read them." We are pursuing the details related to the Milwaukee option. I'll be back on the phone tomorrow. Keep praying, keep hoping, keeping thinking good thoughts.
Her laughter, her spirit, the wonderful contributions she will make in this world are just too much to lose! I saw so many sick kids today: babies, teens, and Kinsey-size. I thought about all the statistics, and it hit me fresh: Some of them are going to die. Even when the odds are 70%, 80%, 90%, they are never 100% and some will die. Just please God, not mine. Not Mine!!!!!
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