The plane leaves Milwaukee to come get us in the morning and should arrive in Albuquerque about 1:30. The ambulance should be waiting at the airport to pick up the nurses who will come back to the hospital to get us. So an ambulance ride to the airport and then a plane ride, about 5 hours with one fuel stop. Kinsey is excited and is looking forward to new digs. Audrey, Aunt Ann, and Jillian will depart Saturday and probably arrive late Sunday or Monday. I will have to email via an AOL account and am in the process of setting a new one up. I think I have everyone's address to re-enter, but if you have not heard from me by next Sunday or Monday, email me at akmruby@aol.com. If you do not want to remain on the list, let me know that as well and I won't put you on the new list. I will provide contact info in the next email. In the meantime, Audrey will be here and know how to reach us within 10 minutes of our arrival.
Biopsy came back negative for fungal infection and negative (so far) for bacterial infections. Doc is speculating the surface bacteria (which was apparently a fair amount) is probably the culprit. Since all cultures remain negative, we are assuming this is all we are dealing with. Kinsey continues to be on 3 IV antibiotics (including the one for fungal, which may or may not continue). She continues to run a fever. She's not eating (about 3-4 bites a day which do not always stay down), but she is overall seeming to feel better. This is probably mostly due to the laptop donated to her by NM Bank and Trust (Thank you Peggy Reed!) The child wants to play it from the time she wakes up until time to go to bed. She is rude to anyone who interferes with her computer play. She said today, without looking up, to a nurse attempting to take her blood pressure, "Okay, but use this arm" (the one not operating the mouse). The only real problem with the computer is that I can't use it at all. I wanted to bring it home to put some things on it from my desktop and Audrey said, "Are you crazy?" I didn't have the nerve to suggest it. So we still have an option or two out there for a second one down the road here, in case I might want or need to use it for more than 5 minutes or between 3 and 6 a.m. One bit of good news for the trip tomorrow, I am informed that the plane has an electrical outlet and she will be allowed to use the computer. I might just take a book!
Kinsey's neutrophils of 50 yesterday are back to zero again today. No shock but disappointing. However, her monocytes (another kind of white cell) was up to 2% or 21!!! This could be a tiny bit of good news, if it proves to be a trend and not another blip. Those cells are sometimes precursors to neutrophils.
We were telling Kinsey the other day about the big lake next to Milwaukee. When we mentioned its name, she said, frowning "That's the lake in the book about the bears." There is a book which was given to her as a gift some time back about a mother bear who escapes a fire by swimming across Lake Michigan with her cubs swimming behind her. She keeps looking back to check on them and they are struggling but keeping up. Night falls and she looses sight of them. She reaches the other side at daybreak and they are nowhere to be found, but she watches for them and waits. She watches and waits and waits and waits. She refuses to move and spends the rest of her days waiting and watching for them. Two small islands are said to be those cubs. Every time we read that book to Kinsey, we all cried. When we were going through things to select items for the rummage sale coming up in June to benefit the Kinsey T. Morrison fund, Kinsey picked that book up and said, "Mommy, let's get rid of this book. It's always sad but especially now." That book is in Peggy Reed's house with many other toys, books, and a car bed. That sad story is too much to contemplate for us now as we head toward that lake, Audrey and I leading the way with our little ones in tow. But while Kinsey would make a fine name for an island, we intend to bring this little one back to the desert: healthy and whole, one way or another. That is our hope. That is our belief. That is our prayer. Help us to keep thinking those thoughts and we will hope this new doctor and these next few weeks will begin to turn those thoughts into reality.
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